NIH ELSI Funded Projects Titles List

1. HG00002: Seminar on Ethical and Policy Issues Arising from the Project to Map and Sequence the Human Genome %%M2
   
   
2. HG00008:Medicine at the Crossroads %%F1
   
   
3. HG00009T:Short Course in Ethics and Genomic Analysis %%M0
   
   
4. HG00009Y:Agenda-Setting in the Human Genome Initiative %%M0
   
   
5. HG00010:Science, Technology and the Perfect Child: An Ethics and Values Critique %%F2
   
   
6. HG00019: Tuskegee Genome Conference %%M1
   
   
7. HG00020:The First International Conference on DNA Sampling & Human Genetic Research: Ethical, Legal and Policy Aspects %%M1
   
   
8. HG00026: Ethical and Legal Issues in the Diffusion of Genetic Tests %%M15
   
   
9. HG00037:The Stigma of Disease: Implications of Genetic Testing %%M4
   
   
10. HG00076:Genetics, Ethics, and Choice: A Qualitative Study %%?3
    
    
11. HG00077:An Educational Ethics Casebook for Genetic Counseling %%F1
    
    
12. HG00085: Outcomes of Education and Counseling forBRCA1 Testing %%F0
    
    
13. HG00086:Legal Issues in Genetic Discrimination %%F0
    
    
14. HG00101: An Evaluation of the Application of DNA Technology in Forensic Science %%M1
    
    
15. HG00110: Strategies for Documentation of Research on the Human Genome %%F0
    
    
16. HG00119: Ethical and Legal Implications of Genetic Testing %%M3
    
    
17. HG00130: Ethical and Legal Studies Relating to the Program to Map and Sequence The Human Genome %%M2
    
    
18. HG00160: Legal and Ethical Issues Raised by the Human Genome Project %%M3
    
    
19. HG0165:Outcomes for Education and Counseling for HNPCC Testing %%M0
    
    
20. HG00191: Beliefs and Attitudes Towards Hereditary Prostate Cancer %%?0+
    
    
21. HG00192: Social and Policy Issues in Genetic Technology Transfer %%F0+
    
    
22. HG00199:Utah Center for Human Genome Research Genesis/ELSI Core %%M0
    
    
23. HG00206:Human Genome Education Program %%M0+
    
    
24. HG00209:Genome Center Education Program %%F1
    
    
25. HG00263:Sequencing mtDNA for Human Identification %%F2
    
    
26. HG00265:A Legal Research Agenda for the Human Genome Initiative %%M1
    
    
27. HG00270: Governments State Governments and the Human Genome Project %%M3
    
    
28. HG00401:The Human Genome Project: a Public Forum %%F1
    
    
29. HG00402: Insurance Implications of a Complete Human Genome Map %%M6
    
    
30. HG00411:Genetic Counselors as Educators on Human Genome Issues %%F2
    
    
31. HG00417:Organizing the HGI: Social Impact and Technology Design %%M6
    
    
32. HG00418: Ethical Priorities in for Clinical Uses of Genome Research %%M2
    
    
33. HG00419: Reassessing Health, Normality, and Confidentiality %%M3
    
    
34. HG00421:Human Genome Workshop: Ethics, Law and SocialPolicy %%M3
    
    
35. HG00431: Human Genome Research in an Interdependent World %%M1
    
    
36. HG00432:The Genetic Prism: Understanding Health and Responsibility %%M1
    
    
37. HG00433:Ethics, Values, Professional Responsibilities %%M3
    
    
38. HG00447: Human Heredity in American Popular Culture %%F10
    
    
39. HG00449: Labor Conference on the Workplace and the Human Genome %%M0
    
    
40. HG00477:A Paradigm Approach to Ethical Problems in Genetics %%M4
    
    
41. HG00481:Ethical and Policy Issues in Cystic Fibrosis Screening %%M5
    
    
42. HG00487:Theological Questions Raised by the Human Genome Initiative %%M13
    
    
43. HG00503:The Human Genome Initiative and Access to Health Care %%M4
    
    
44. HG00538: Ethical Guidance for Family Studies in Human Genetics %%M2
    
    
45. HG00540: Geneticists Approach Ethics: An International Survey %%F17
    
    
46. HG00543:National Information Resource on Ethics and Human Genetics %%M9
    
    
47. HG00545: Managing Genetic Information: Policies for US Nurses %%F1
    
    
48. HG00551: Genome Mapping: Implications for Health and Life Insurance %%M3
    
    
49. HG00573: Cancer and the Human Genome: Ethical Implications %%M1
    
    
50. HG00580: Societal Impact of Human Genetic Engineering %%M1
    
    
51. HG00584: The Human Genome Project: A Choices and Challenges Forum %%F1
    
    
52. HG00616: How Much Information about the Risk of Cystic Fibrosis Do Couples Want to Know? %%M2
    
    
53. HG00621:Prescriptive Decision Modeling for Cystic Fibrosis Screening %%M3
    
    
54. HG00638: Cystic Fibrosis Screening: An Alternative Paradigm %%M16
    
    
55. HG00639:Perception of Carrier Status by Cystic Fibrosis Siblings %%F5
    
    
56. HG00641:The Human Genome Project and Women %%F7
    
    
57. HG00643: An Evaluation of Testing and Counseling for CF Carriers %%M5
    
    
58. HG00644:Genetic Testing in the Ashkenazi Jewish Population %%M1
    
    
59. HG00661:The Human Genome Project: Human and Scientific Dimensions %%M2
    
    
60. HG00683:Access to the Genome: Justice at the Frontier of Science %%M5
    
    
61. HG00703: Genetic Factors in Crime-Findings, Uses Implications %%M1
    
    
62. HG00712: The Secret of Life %%M2
    
    
63. HG00724: Academic-Industry Relationships in Genetics %%M3
    
    
64. HG00725:A Predictive Testing Program for P53 Mutations in LFS %%F4
    
    
65. HG00738: A Conference on Human Genome Research Implications %%F6
    
    
66. HG00786:Human Genome Education Model Program %%F9
    
    
67. HG00793: Impact of the HGI on Society: A Women's Studies Approach %%F3
    
    
68. HG00835: ELSI Core for the Cooperative Human Linkage Center (CHLC) %%M2
    
    
69. HG00849: Genetics and Behavior in the News Media-1945-1995 %%M0
    
    
70. HG00901:Information and the Transformation of Molecular Biology %%F1
    
    
71. HG00905:The Use of Genetic Information in Reproductive Decisions %%M3
    
    
72. HG00908:Prenatal Genetic Testing-Provider-Patient Communication %%F2
    
    
73. HG00911:Preparing for the New Genetics: Education of Professionals %%M2
    
    
74. HG00912: Genetic Reductionism-Its Sources and Implications %%?2
    
    
75. HG01003:Human Genome Project Education and Outreach %%F1
    
    
76. HG01005: Genome Technology & Reproduction - values & public policy %%?1
    
    
77. HG01023: The Human Genome Initiative and Limits of Ethical Theory %%M1
    
    
78. HG01038:The Impact of DNA Typing on Criminal Investigations %%M0
    
    
79. HG01082:The ELSI Electronic Case Book Project %%F0+
    
    
80. HG01085: Genetic Susceptibility Testing for Breast Cancer/Guiding Clinicians in Genetic Assessment of Cancer Risk %%M13
    
    
81. HG01086:Confidentiality, Privacy & Insurance %%F0
    
    
82. HG01092:Ethics, Genetics and Alzheimer Disease %%M25
    
    
83. HG01110:Update and Dramatization of a Genetics Curriculum %%F1
    
    
84. HG01115:National Information Resource on Ethics and Human Genetics %%M8
    
    
85. HG01168: Prenatal Testing for Genetic Disability %%M1
    
    
86. HG01177: Research, Treatment and Informed Consent in Gene Therapy %%M3
    
    
87. HG01189:Coping with Genetic Risk for Breast and Ovarian Cancer %%F1
    
    
88. HG01197: Gene Tests for Colon Cancer Risk: Psychosocial Studies %%F4
    
    
89. HG01200:Psychosocial Aspects of Genetic Testing for HNPCC %%F4
    
    
90. HG01213:Psychological Impact of Parental Genetic Testing on Adolescent Girls %%F0
    
    
91. HG01241:Genetic Testing for Colon Cancer in Multiethnic Hawaii %%F1
    
    
92. HG01244:Dissemination of a BRCA1 Predisposition Testing Program %%F5
    
    
93. HG01245: Practice Guidelines - Cancer Risk Information Providers %%F0
    
    
94. HG01255:Optimizing Prenatal Testing Decision-Making %%F3
    
    
95. HG01276:Implications of Genome Research: A Model College Course %%M0+
    
    
96. HG01277: Conceptual Frameworks for Genetics Policy %%F8
    
    
97. HG01284: Families and Carrier Testing for Hemophilia A %%F0
    
    
98. HG01285: Genetic Testing and Screening for Mental Health Disorders %%M0
    
    
99. HG01302:ELSI Research in Two Native American Communities %%M3
    
    
100. HG01362: An Empirical Study of Change in Public Genetic Discourse %%F3
     
     
101. HG01384: Use of Amniocentesis by Mexicans and Mexican Americans %%F4
     
     
102. HG01445: Hemophilia 'A' Carrier Testing-Acceptance and Reactions %%M0+
     
     
103. HG01446: Anticipating Enhancement: Ethical, Legal and Social Issues %%M6
     
     
104. HG01505: The Genome Project and Technologies of Enhancement %%M0
     
     
105. HG01509: Genetic Education for Southeastern States (GenESES) %%F0
     
     
106. HG01510: Genetic Dilemmas in Primary Care: An Educational Program %%M0
     
     
107. HG01511: Public Health Genetics: An Education Model. %%F0+
     
     
108. HG01516: Summer Genetics Program for Nursing Faculty %%F4
     
     
109. HG01551:Digital Image Archive on the American Eugenics Movement %%M0+
     
     
110. HG01554:Attitudes About Hereditary Breast Cancer %%F0+
     
     
111. HG01555: A Model for State Policy on Genetic Testing/Screening %%M0+
     
     
112. HG01576: BRCA1/2 Testing: Patient Uptake and Treatment Choices %%F1
     
     
113. HG01582:Mapping Genetic Knowledge: An Anthropological Study %%F0+
     
     
114. HG01651:Ensuring Confidentiality in the Publication of Pedigrees %%M1
     
     
115. HG01655: Perceptions of Risk and Genetic Testing for AD %%F0+
     
     
116. HG01662:Effects of Restricting Insurers' Use of Genetic Info %%M2
     
     
117. HG01680:Community Genetics and Ethics Projects %%M0+
     
     
118. HG01685: Genetics in Nursing Literature and Continuing Education %%F0+
     
     
119. HG01686:Practice-Based Genetics Curriculum for Nurse Educators %%F1
     
     
120. HG01692: Partnership for Genetic Services %%F1
     
     
121. HG01743: Cancer Risk Information Providers (CRIP): Phase III %%F0+
     
     
122. HG01765:Informed Consent to DNA Banking for Research %%M3
     
     
123. HG01766: Facilitating Well-Informed Decisions for BRCA Testing %%F5
     
     
124. HG01767: An Experimental Study to Improve Risk/Benefit Appraisal %%M0+
     
     
125. HG01789: Data-Sharing and Data-Withholding in Genetics Research %%M0+
     
     
126. HG01817: Small Program for Conference Support %%F0+
     
     
127. HG01837: History of Breast Cancer Risk, 1900-Present %%M0+
     
     
128. HG01838: Human Genome Project: Science, Law, and Social Change %%M1
     
     
129. HG01846:Comparing Models of Pre-Test Education for BRCA1 Testing %%F0+
     
     
130. HG01866: Genetic Education for Native Americans %%F0+
     
     
131. HG01871: Publicizing Genetic Discoveries: The Impact of the Media %%F0+
     
     
132. HG01885: Family Disclosure of Cancer Risk: An Ethnographic Study %%F0+
     
     
133. HG01889:Genetics Legislation: Syntax, Science and Policy %%M0+
     
     
134. HG02138: Predicting Future Disease: Issues in the Development, Application, and Use of Tests for Genetic Disorders %%F1
     
     
135. HG07573:Two Units: Molecular Genetics and Environmental Chemistry %%F0
     
     
136. HG10001: Biotechnology and the Diagnosis of Genetic Disease %%F1
     
     
137. HG10002: Technology and Social Change: The Impact of Genetic Forecasting on Attitudes and Values %%F2
     
     
138. HG10004: Research and Application of Genetics Blood Group: 1900-1950 %%M1
     
     
139. HG10005: History of Prenatal Diagnosis %%F2
     
     
140. HG20002:2nd Annual Conference on Computers, Freedom, and PrivacY %%M1
     
     
141. HG20003: National Study Conference on Genetics, Religion, and Ethics %%M2
     
     
142. HG20004:Impact of HGP Derived Technology on Genetic Testing,Screening and Counseling:Cultural, Ethical, and Legal Issues %%M8
     
     
143. HG20005:Pathways to Genetic Screening: Patient Knowledge - Patient Practices %%M11
     
     
144. HG20007:Visions for a Sustainable World: Science, Technology, and Social Responsibility %%F2
     
     
145. HG40013: Seeking Common Ground: A Forum for People with Disabilities and Genetics Professionals %%F0
     
     
146. HG54435:Comparing Models of Pre-Test Education for BRCA1 Testing %%F8
     
     
147. HG70003: The Human Genome Project: Reaching the Minority Communities of Maryland %%M0

1. CA01190:Counseling Strategies for Breast Cancer Risk %%F0
   
   
2. CA63681: Behavioral and Psychosocial Effects of BRCA1 Testing %%M8
   
   
3. CA65516: International ELSI Cancer Research Workshop %%F0
   
   
4. CA70638:Breast Cancer Gene Education-Computer vs Practitioner %%M3
   
   
5. CA74861:Decisions and Outcomes of BRCA1/2 Test for Breast Patients %%F0
   
   
6. CA76992:Evaluating Informed Consent in BRCA1/2 Screening %%M0+
   
   
7. CA79654: Counseling Strategies for Breast Cancer Risk %%F2
   
   
8. DC03772: Consumer Conference on Genetics and Hearing Loss Research %%F3
   
   
9. DK43295:National Institute of Diabetes and Digestive and Kidney Diseases 4th International Conference on Newborn Screening for C.F. %%M0
   
   
10. DK44794:Cystic Fibrosis Carrier Screening Educational Materials %%F1
    
    
11. HD13136:Ethics and Genetics: A Survey of Approaches in the US and Canada %%F11
    
    
12. HD29337:Cystic Fibrosis Mutation Screening and Counseling %%M4
    
    
13. HD32568: Novel Approaches to the Treatment of Genetic Disorders %%F0
    
    
14. HD36189: Minors At-Risk of Future Disease: Their Role in Research %%F1
    
    
15. LM06029:Genline: An Electronic Clinical Genetics Knowledge Base %%F1
    
    
16. NR03125: Testing and Counseling for Cystic Fibrosis Mutations %%M3
    
    
17. OD40065: DNA Forensics Science: An Update-Supplement %%M1
    
    
18. NR04062: A Model Informed Consent Process for BRCA1 Testing %%F9
    
    
19. PBR-97:Impact of Genetic Counseling and Testing for Breast Cancer %%M1