Legal Implications Bibliography

Legal & Justice

  1. Alper, JS, LN Geller, CI Barash, PR Billings, V Laden and MR Natowicz. "Genetic Discrimination and Screening for Hemochromatosis" Journal of Public Health Policy, Vol 15, No. 3 (Autumn 1994) pp. 345-358.

  2. Billings, P.A. et al. "Case Study: But Is He Genetically Diseased?" Hastings Center Report. Jul-Aug 1992: 22(4)Special Supplement; S18-20.

  3. Berger, E.M. and B. Gert. "Genetic Disorders and the Ethical Status of Germ-Line Gene Therapy." Journal of Medicine and Philosophy. December 16, 1991: 16(6); 667-683.

  4. Geller, G. and N.A. Holtzman. "Implications of the Human Genome Initiative for the Primary Care Physician." Bioethics. 1991: 5(4); 318-325.

  5. Geller, G., E.S. Tambor, G.A. Chase et al. "Measuring Physicians' Tolerance for Ambiguity and its Relationship to Their Reported Practices Regarding Genetic Testing." Medical Care. 1993: 31(11); 989-1001.

  6. Geller, G., E.S. Tambor, B.A. Bernhardt et al. "Physicians' Attitudes toward Disclosure of Genetic Information to Third Parties." The Journal of Law, Medicine & Ethics. Summer 1993: 21(2); 238-240.

  7. Geller, G. and N.A. Holtzman. "A Qualitative Assessment of Primary Care Physicians' Perceptions About the Ethical and Social Implications of Offering Genetic Testing." Qualitative Health Research. February 1995: 5(1); 97-116.

  8. Geller, G., B.A. Bernhardt, K Helzlsouer et al. "Informed Consent and BRCA1 Testing." (Correspondence) Nature Genetics. December 1995; 11: 364.

  9. Geller, G., E.S. Tambor, G.A. Chase et al. "Incorporation of Genetics in Primary Care Practice: Will Physicians Do the Counseling and Will They Be Directive?" Archive of Family Medicine. November 1993: 2; 1119-1125.

  10. Gert, B., E.M. Berger, G.F. Cahill, Jr. et al. Morality and the New Genetics: A Guide for Students and Health Care Providers. Boston: Jones and Bartlett, 1996. 242p.

  11. Health Law Issue. "Symposium: Legal and Ethical Issues Raised by the Human Genome Project." University of Houston Law Review. Spring 1992: 29(1).

  12. Hofman, K.J. et al. "Physicians' Knowledge of Genetics and Genetic Tests." Academic Medicine. August 1993: 68(8); 625-632.

  13. Holtzman, N.A. "The Diffusion of New Genetic Tests for Predicting Future Disease." FASEB Journal. 1992: 6; 2806-2812.

  14. Holtzman, N.A. "Primary Care Physicians as Providers of Frontline Genetic Services." Fetal Diagnosis and Therapy. 1993: 8(supplement 1); 213-219.

  15. Holtzman, N.A. "Benefits and Risks of Emerging Genetic Technologies: The Need for Regulation." Clinical Chemistry. 1994: 40(8); 1652-1656.

  16. Holtzman, N.A. "Discovery, transfer, and diffusion of technologies for the detection of genetic disorders: Policy implications." International Journal of Technology Assessment in Health Care. 1994; 10: 562-572.

  17. Holtzman N.A. "Are we ready to screen for inherited susceptibility to cancer?" Oncology. 1996; 10: 57-64.

  18. Holtzman N.A. "Medical and ethical issues in genetic screening -- An academic view." Environmental Health Perspectives. 1996; 104(5): 987-990.

  19. Holtzman N.A., Andrews L. "Ethical and legal issues in genetic epidemiology." Epidemiologic Reviews. 1997; 19: 163-174.

  20. Juengst, E.T. "Can Prevention be Distinguished from Enhancement in Genetic Medicine?" Journal of Medicine and Philosophy. 1997; 22: 125-142.

  21. Juengst, E.T. "The Meaning of Enhancement'" In: Enhancing Human Capacities: Conceptual Complexities and Ethical Implications, Erik Parens, ed. Washington, DC: Georgetown University Press. (In press)

  22. Dennis Karjala. A Legal Research Agenda for the Human Genome Initiative. Jurimetrics Journal. vol 32, number 2, Winter 1992, pages 121-311.

  23. Knoppers, B.M., C.M. Laberge and M. Hirtle, eds. Human DNA: Law and Policy. The Hague, The Netherlands: Kluwer Law International, 1997.

  24. V.A. Laden and G. Schwartz "Psychiatric Disabilities, the Americans withDisabilities Act, and the New Workplace Violence Account" Berkeley Journal of Employment and Labor Law, Vol. 21, No. 1 (2000), pp. 246-270.

  25. Mehlman, M.J. and K. Visocan. "Medicare and Medicaid: Are They Just Health Care Systems?" Houston Law Review: Winter 1992; 29(4): 835.

  26. Mehlman, M.J. and J.R. Botkin. Access to the Genome: The Challenge to Equality. Washington, DC: Georgetown University Press. 1998. 152p.

  27. Rothstein, M.A., ed. Legal and Ethical Issues Raised by the Human Genome Project. Houston, Texas: University of Houston Health Law and Policy Institute, March 1991. 449p.

  28. Tambor, E.S., G.A. Chase, R.R. Faden et al. "Improving Response Rates through Incentive and Follow-up: The Effect on a Survey of Physicians' Knowledge of Genetics." American Journal of Public Health. November 1993: 83(11); 1599-1603.

  29. Whitehead Institute for Biomedical Research and American Society for Law, Medicine & Ethics. "The Human Genome Project: Science, Law and Social Change in the 21st Century." Whitehead Policy Symposium Report and CD-ROM. April 23-24, 1998. Cambridge, Massachusetts.

  30. Whitehouse, P.J., E.T. Juengst, T.H.Murray and M.J. Mehlman. "Enhancing Cognition in the Intellectually Intact." The Hastings Center Report. May-June 1997; 27: 14-23.

Insurance, Discrimination, Genetic Testing, Privacy & Confidentiality

  1. Botkin, J.R., W.M. McMahon, K.R. Smith and J.E. Nash. "Privacy and Confidentiality in the Publication of Pedigrees: A Survey of Investigators and Biomedical Journals." JAMA. June 10, 1998; 279(22): 1808-1812.

  2. Capron, A.M. "Human Genome Research in an Interdependent World." Kennedy Institute of Ethics Journal. September 1991; 1(3): 247-251.

  3. Capron, A.M. "Hedging Their Bets." Hastings Center Report. May-June 1993; 23(3): 30-32.

  4. Conference Proceedings: The Genome, Ethics, and the Law: Issues in Genetic Testing. Washington, DC: AAAS (publication Number 92-115), 1992. 124p.

  5. Crandall, L.A. and R.E. Moseley. "Public Policy Implications of Scientific Research: The Human Genome Initiative and the Future of Insurance." The New Biologist. December 1991: 3(12); 1135-1136.

  6. Dewar, M.A., R.E. Moseley, H. Ostrer et al. "Genetic Screening by Insurance Carriers." (Letter) JAMA. March 1992: 267(9); 1207-1208.

  7. Frankel M. and A. Teich. Ethical and Legal Issues in Pedigree Research. Washington, DC: AAAS, 1993. 216p.

  8. Frankel, M. and A. Teich, eds. The Genetic Frontier: Ethics, Law and Policy. Washington, DC: AAAS, 1994. 240p.

  9. Hoffmann, D.E. and E.A. Wulfsberg. "Testing Children for Genetic Predispositions: Is it in Their Best Interest?" The Journal of Law, Medicine & Ethics. Winter 1995: 23(4); 331-344.

  10. Institute of Medicine Committee on Assessing Genetic Risks. Assessing Genetic Risks: Implications for Health and Social Policy. eds. L.B. Andrews et al. Washington, DC: National Academy Press, 1994. 338p.

  11. McCrary, S.V., W.L. Allen, R.E. Moseley et al. "Ethical and Practical Implications of the Human Genome Initiative for Family Medicine." Archives of Family Medicine. 1993: 2(11); 1158-1163.

  12. McCrary S.V. and W.L. Allen "The Human Genome Initiative and Primary Care." In: Ethics: Critical Issues for Today's Health Professional, eds. J.F. Monagle and D.C. Thomama. Gaithersburg, Maryland: Aspen Publishers, 1994. 447p.

  13. Moseley, R.E., L.A. Crandall, M.A. Dewar et al. "Ethical Implications of a Complete Human Gene Map." Business and Professional Ethics. Winter 1991: 10(4); 1-14.

  14. Murray, T.H. "Ethics, Genetic Prediction, and Heart Disease." American Journal of Cardiology. September 1993: 72(10); 80D-84D.

  15. Murray, T.H. "Genetics and the Moral Mission of Health Insurance." Hastings Center Report:1992; 22(6); 12-17.

  16. Murray, T.H. "Genetic Exceptionalism and 'Future Diaries': Is Genetic Information Different from Other Medical Information," in Mark A. Rothstein, Ed., Genetic Secrets: Protecting Privacy and Confidentiality in the Genetic Era. New Haven: Yale University Press, 1997.

  17. Murray, T.H., M.A. Rothstein, and R.F. Murray, Jr. The Human Genome Project and the Future of Health Care. Bloomington, IN: Indiana University Press, 1996.

  18. Ostrer, H., W.L. Allen, L.A. Crandall et al. "Insurance and Genetic Testing: Where Are We Now?" American Journal of Human Genetics. 1993: 52; 565-577.

  19. Trottier, R.W. and L.A. Crandall. Public Sector Genetic Services: Current Status and Potential Issues Raised by the Human Genome Project. Final Report, Morehouse School of Medicine; Atlanta: October 1996.

  20. Wachbroit, R. "Rethinking Medical Confidentiality: The Impact of Genetics." Suffolk University Law Review. Winter 1993: 27(4); 1391-1410.

  21. Wasserman, D. "Disability, Discrimination, and Fairness." Report from the Institute for Philosophy & Public Policy. 1993: 13; 7-12. Wulfsberg, E.A. et al. "Alpha-Antitrypsic Deficiency: Impact of Genetic Discovery on Medicine and Society." JAMA. 1994: 271(3); 217-222.

Crime & Forensics

  1. National Research Council. DNA Technology in Forensic Science. Washington, DC: National Academy Press, 1992. 185p.

  2. National Research Council. The Evaluation of Forensic DNA Evidence. Washington, DC: National Academy Press, 1996.

  3. Wasserman, D. "Research into Genetics and Crime: Consensus and Controversy." Politics and the Life Sciences. March 1996: 15(1); 107-109.

Legislation & Policy

  1. Andrews, L.B. "Genetic Fallout: New Technologies Are Changing the Legal Landscape." TRIAL. December 1995: 20-27.

  2. Andrews, L. B. "Prenatal Screening and the Culture of Motherhood." Hastings Law Journal. April 1996; 47(4): 967-1006.

  3. Andrews, L. B. "Body Science." American Bar Association Journal. April 1997; 83: 44-49.

  4. Andrews, L. B. "Compromised Consent: Deficiencies in the Consent Process for Genetic Testing." Journal of the American Medical Women's Association. 1997; 52: 39.

  5. Andrews, L. B. "Past as Prologue: Sobering Thoughts about Genetic Enthusiasm." Seton Hall LawReview. (forthcoming)

  6. Andrews, L. B.. "Gen-etiquette: Are There Moral and Legal Responsibilities to Share Genetic Information within Families?" Genetic Secrets: Protecting Privacy and Confidentiality in the Genetic Era. ed. Mark Rothstein. Yale University Press (forthcoming).

  7. Andrews, L.B. "Predicting and Punishing Anti-Social Acts." In Behavioral Genetics : The Clash of Culture and Biology. Ronald A. Carson(Editor), Mark A. Rothstein (Editor), Floyd E. Bloom. Johns Hopkins University Press 1999.

  8. Andrews, L.B. "Legal Issues in the Regulation and Use of Genetic Testing." in Stanford Working Group on Breast Cancer Final Report. (forthcoming)

  9. Blumenthal, D. "Academic-Industry Relationships in the Life Sciences." JAMA. December 16, 1992: 268; 3344-3349.

  10. Blumenthal, D. "Growing Pains for New Academic/Industry Relationships." Health Affairs. Summer 1994; 13(3): 176-193.

  11. Blumenthal, D., E.G. Campbell, M.S. Anderson et al. "Withholding Research Results in Academic Life Science." JAMA. April 16, 1997; 277(15): 1224-1228.

  12. Brown, R.S. "The State Response to Genetic Research." Journal of State Government. Jul-Sep 1991; 64(3): 98-99.

  13. Brown R.S. and K. Marshall, eds. Advances in Genetic Information: A Guide for State Policy Makers. Lexington, KY: The Council of State Governments; 1992. 123p.

    Brown, R.S. "State Governments and the Human Genome Project." Genetic Resource.

  14. Bernhardt, B.A., G.A. Chase, R.R. Faden et al. "Educating Patients About Cystic Fibrosis Carrier Screening in a Primary Care Setting." Archives of Family Medicine. 1996: 5; 336-340.

  15. Cystic Fibrosis Carrier Testing: The Choice is Yours. (An educational videotape on cystic fibrosis testing). Baltimore: The Johns Hopkins University, 1992.

  16. Faden, R.R. et al. "Attitudes of Physicians and Genetics Professionals Toward Cystic Fibrosis Carrier Screening." American Journal of Medical Genetics. 1994: 50(1); 1-11.

  17. Myers, M.F., B.A. Bernhardt, E.S. Tambor and N.A. Holtzman. "Involving Consumers in the Development of an Educational Program for Cystic Fibrosis Carrier Screening." American Journal of Human Genetics. 1994: 54(4); 719-726.

  18. Scanlon, C. and W. Fibison. Managing Genetic Information: Implications for Nursing Practice. Washington, DC: American Nurses Association, 1995. 60p.

  19. Tambor, E.S., B.A. Bernhardt, G.A. Chase et al. "Offering Cystic Fibrosis Carrier Screening to an HMO Population: Factors Associated with Utilization." American Journal of Human Genetics. 1994: 55(4); 626-637.

  20. University of Michigan and the Michigan State University Center for Ethics and Humanities in the Life Sciences. "Genome Horisons: Public Deliberations & Policy Pathways." Project Reports and Conference Proceedings. August 1998. 96p.