Ethical Implications Bibliography

  1. Annas, G.J. and S. Elias, eds. Gene Mapping: Using Law and Ethics as Guides. New York: Oxford University Press, 1992. 291p.

  2. Annas, G.J. and S. Elias. "The Human Genome Project: Social Policy Research Priorities." Politics and the Life Sciences, August 1992: 11(2); 245-249.

  3. Annas, G.J. and S. Elias. "Social Policy Issues Raised by the Human Genome Project." Genetic Resource. 1992; 6(2): 32-37.

  4. Bartels, D.M.; B.S. LeRoy; and A.L. Caplan, eds. Prescribing Our Future: Ethical Challenges in Genetic Counseling. Hawthorne, NY: Aldine de Gruyter, 1993. 186p.

  5. Berger, E.M. and B. Gert. "Genetic Disorders and the Ethical Status of Germ-Line Gene Therapy." Journal of Medicine and Philosophy. December 16, 1991: 16(6); 667-683.

  6. Bernhardt, B.A., G.A. Chase, R.R. Faden et al. "Educating Patients About Cystic Fibrosis Carrier Screening in a Primary Care Setting." Archives of Family Medicine. 1996: 5; 336-340.

  7. Billings, P.A. et al. "Case Study: But Is He Genetically Diseased?" Hastings Center Report. Jul-Aug 1992: 22(4)Special Supplement; S18-20.

  8. Boyle, P.J. et al. "Genetic Grammar: Health, Illness, and the Human Genome Project." Hastings Center Report. 1992; Special Supplement 22(4): S1.

  9. Boyle, P.J. et al. "Public Priorities for Genetic Services." Hastings Center Report. May-June 1995; 25(3, Special Supplement)

  10. Buchanan, Allen, Dan Brock, Norman Daniels and Daniel Wilker. From Chance to Choice: Genetics and Justice. Cambridge University Press 2000.

  11. Callahan, T.C.; S.J. Durfy; and A.R. Jonsen. "Ethical Reasoning in Clinical Genetics: A Survey of Cases and Methods." Journal of Clinical Ethics. Fall 1995: 6(3); 248-253.

  12. Caplan, A.L. "Neutrality is Not Morality: The Ethics of Genetic Counseling." In: Prescribing Our Future, eds. Bartels et al. Hawthorne, NY: Aldine de Gruyter, 1993.

  13. Capron, A.M. "Human Genome Research in an Interdependent World." Kennedy Institute of Ethics Journal. September 1991; 1(3): 247-251.

  14. Capron, A.M. "Hedging Their Bets." Hastings Center Report. May-June 1993; 23(3): 30-32.

  15. Cohen, G., R. Cook-Deegan, R.M. Green, S.G. Post et al. "Alzheimer Testing at Silver Years." Cambridge Healthcare Quarterly (in press).

  16. Cohen, P.E., D.C. Wertz, I Nippert and G. Wolff. "Genetic Counseling Practices in Germany: A Comparison Between East German and West German Geneticists." Journal of Genetic Counseling. 1997; 6(1): 61-80.

  17. Cole-Turner, R. "Religion and the Human Genome Project." Journal of Religion and Health. 1993: 31(2); 161-173.

  18. Cole, R. D. "Genetic Predestination." dialog: a Journal of Theology. 1994: 33(1); 17-22.

  19. Cole-Turner, R. "Genetic Counseling and Pastoral Counseling." dialog: a Journal of Theology. 1994: 33(1): 49-53.

  20. Cole-Turner, R. "The Genetics of Moral Agency." In: The Genetic Frontier: Ethics, Law and Policy, eds. M. Frankel and A. Teich. Washington, DC: AAAS, 1994.

  21. Cole-Turner, R. The New Genesis: Theology and the Genetic Revolution. Westminster: John Knox Press, 1993. 127p.

  22. Conference Proceedings: The Genome, Ethics, and the Law: Issues in Genetic Testing. Washington, DC: AAAS (publication Number 92-115), 1992. 124p.

  23. Coutts, M.C. "Scope Note 24: Human Gene Therapy." Kennedy Institute of Ethics Journal. March 1994; 4(1): 68-83.

  24. Coutts, M.C. and P.M. McCarrick. "Scope Note 28: Eugenics." Kennedy Institute of Ethics Journal. June 1995; 5(2).

  25. Cystic Fibrosis Carrier Testing: The Choice is Yours. (An educational videotape on cystic fibrosis testing). Baltimore: The Johns Hopkins University, 1992.

  26. Darragh, M. and P.M. McCarrick. "Genetics and Ethics: Selections from Updated Scope Notes." Kennedy Institute of Ethics Journal. September 1997; 7(3): 299-318.

  27. Durfy, S.J. "Ethics and the Human Genome Project." Archives of Pathology and Laboratory Medicine. May 1993: 117(5); 466-469.

  28. Faden, R.R. et al. "Attitudes of Physicians and Genetics Professionals Toward Cystic Fibrosis Carrier Screening." American Journal of Medical Genetics. 1994: 50(1); 1-11.

  29. Frankel M. and A. Teich. Ethical and Legal Issues in Pedigree Research. Washington, DC: AAAS, 1993. 216p.

  30. Frankel, M. and A. Teich, eds. The Genetic Frontier: Ethics, Law and Policy. Washington, DC: AAAS, 1994. 240p.

  31. Geller, G. and N.A. Holtzman. "Implications of the Human Genome Initiative for the Primary Care Physician." Bioethics. 1991: 5(4); 318-325.

  32. Geller, G., E.S. Tambor, G.A. Chase et al. "Measuring Physicians' Tolerance for Ambiguity and its Relationship to Their Reported Practices Regarding Genetic Testing." Medical Care. 1993: 31(11); 989-1001.

  33. Geller, G., E.S. Tambor, B.A. Bernhardt et al. "Physicians' Attitudes toward Disclosure of Genetic Information to Third Parties." The Journal of Law, Medicine & Ethics. Summer 1993: 21(2); 238-240.

  34. Geller, G., E.S. Tambor, G.A. Chase et al. "Incorporation of Genetics in Primary Care Practice: Will Physicians Do the Counseling and Will They Be Directive?" Archive of Family Medicine. November 1993: 2; 1119-1125.

  35. Geller, G. and N.A. Holtzman. "A Qualitative Assessment of Primary Care Physicians' Perceptions About the Ethical and Social Implications of Offering Genetic Testing." Qualitative Health Research. February 1995: 5(1); 97-116.

  36. Geller, G., B.A. Bernhardt, K Helzlsouer et al. "Informed Consent and BRCA1 Testing." (Correspondence) Nature Genetics. December 1995; 11: 364.

  37. Genetics, Religion and Ethics Project, The Institute of Religion and Baylor College of Medicine, the Texas Medical Center, Houston, Texas, June 1, 1992, "Summary Reflection Statement" Human Gene Therapy. October 1992; 3(5): 525-527.

  38. Gert, B., E.M. Berger, G.F. Cahill, Jr. et al. Morality and the New Genetics: A Guide for Students and Health Care Providers. Boston: Jones and Bartlett, 1996. 242p.

  39. Gregg, R. " 'Choice' as a Double-Edged Sword: Information, Guilt and Mother-Blaming in a High-Tech Age." Women and Health. 1993: 20(3); 53-73.

  40. Gregg, R. "Explorations of Pregnancy and Choice in a High-Tech Age." In: Qualitative Studies in Social Work Research, ed. Catherine Kohler Riessman. Thousand Oaks, California: Sage Publications, Inc., 1994.

  41. Gregg, R. Pregnancy in a High-Tech Age: Paradoxes of Choice. New York: New York University Press; 1995.

  42. Guttmacher, Alan. Community Genetics and Ethics Project website. http://www.vtmednet.org/vhgi_mem/cgep.htm

  43. Health Law Issue. "Symposium: Legal and Ethical Issues Raised by the Human Genome Project." University of Houston Law Review. Spring 1992: 29(1).

  44. Heffner, P. "Determinism, Freedom, and Moral Failure." dialog: a Journal of Theology. 1994: 33(1): 23-29.

  45. Hofman, K.J. et al. "Physicians' Knowledge of Genetics and Genetic Tests." Academic Medicine. August 1993: 68(8); 625-632.

  46. Holtzman, N.A. "The Diffusion of New Genetic Tests for Predicting Future Disease." FASEB Journal. 1992: 6; 2806-2812.

  47. Holtzman, N.A. "Primary Care Physicians as Providers of Frontline Genetic Services." Fetal Diagnosis and Therapy. 1993: 8(supplement 1); 213-219.

  48. Holtzman, N.A. "Benefits and Risks of Emerging Genetic Technologies: The Need for Regulation." Clinical Chemistry. 1994: 40(8); 1652-1656.

  49. Holtzman, N.A. "Discovery, transfer, and diffusion of technologies for the detection of genetic disorders: Policy implications." International Journal of Technology Assessment in Health Care. 1994; 10: 562-572.

  50. Holtzman N.A. "Are we ready to screen for inherited susceptibility to cancer?" Oncology. 1996; 10: 57-64.

  51. Holtzman N.A. "Medical and ethical issues in genetic screening -- An academic view." Environmental Health Perspectives. 1996; 104(5): 987-990.

  52. Holtzman N.A., Andrews L. "Ethical and legal issues in genetic epidemiology." Epidemiologic Reviews. 1997; 19: 163-174.

  53. Jonsen, A.R. "Genetic Testing, Individual Rights, and the Common Good." In: Duties to Others, eds. C. Campbell and A. Lustig. Boston: Kluwer Academic, 1994. 319p.

  54. Jonsen, A.R. "The Impact of Mapping the Human Genome on the Patient Physician Relationship." In: The Human Genome Project and The Future of Health Care, eds. T.H. Murray, M. Rothstein, and R. Murray. Bloomington: Indiana University Press, 1996. 248p.

  55. Juengst, E.T. "Can Prevention be Distinguished from Enhancement in Genetic Medicine?" Journal of Medicine and Philosophy. 1997; 22: 125-142.

  56. Juengst, E.T. "The Meaning of Enhancement'" In: Enhancing Human Capacities: Conceptual Complexities and Ethical Implications, Erik Parens, ed. Washington, DC: Georgetown University Press. (In press)

  57. Kevles, D.J. and L. Hood, eds. The Code of Codes: Scientific and Social Issues in the Human Genome Project. Cambridge: Harvard University Press, 1992. 397p.

  58. Kevles, D.J. "Social and Ethical Issues in the Human Genome Project." Phi Kappa Phi Journal (National Forum). Spring 1993; 73: 18-21.

  59. Knoppers, B.M., C.M. Laberge and M. Hirtle, eds. Human DNA: Law and Policy. The Hague, The Netherlands: Kluwer Law International, 1997.

  60. Kosik, K.S., S.G. Post, and K.A. Quaid. "Ethical Implications of Early Diagnosis for Alzheimer disease." Early Diagnosis of Alzheimer Disease, edited by L. Scinto and Kirk Daffner. New York: Humana (in press).

  61. Lebacqz, K. "Genetic Privacy: No Deal for the Poor." dialog: a Journal of Theology. 1994:33(1): 39-48.

  62. LeRoy, B.S. "When Theory Meets Practice: Challenges to the Field Genetic Counseling." In: Prescribing Our Future, eds. Bartels et al. Hawthorne, NY: Aldine de Gruyter, 1993.

  63. Lynn, Joanne, D.L. Marson, S.G. Post, and G.L. Odenheimer. "Legal and Ethical Dilemmas in Alzheimer's Care." Patient Care. 15 December 1996; 30(20): 44-61.

  64. Maley, J.A. and ad hoc Committee on Ethical Codes and Principles, NSGC. An Ethics Casebook for Genetic Counselors. Charlottesville, Virginia: University of Virginia, 1994.

  65. Mao, X and DC Wertz. "China's Genetic Services Providers' Attitudes Towards Several Ethical Issues: A Cross-Cultural Survey." Clinical Genetics. 1997: 52; 100-109.

  66. McCarrick, P.M. "Scope Note 22: Genetic Testing and Genetic Screening." Kennedy Institute of Ethics Journal. September 1993; 3(3): 333-354.

  67. Myers, M.F., B.A. Bernhardt, E.S. Tambor and N.A. Holtzman. "Involving Consumers in the Development of an Educational Program for Cystic Fibrosis Carrier Screening." American Journal of Human Genetics. 1994: 54(4); 719-726.

  68. Nelson, J.R. On the New Frontiers of Genetics and Religion. Grand Rapids, MI: William B. Eerdmans, 1994. 212p.

  69. Peters, T. and R.J. Russell. "The Human Genome Project: What Questions Does It Raise for Theology and Ethics?" Midwest Medical Ethics. Summer 1992: 8(1); 12-17.

  70. Peters, T. "Genome Project Forces New Look at Ethics, Law." Forum for Applied Research and Public Policy: Fall 1993; 8(3): 5-13.

  71. Peters, T. "On the Gay Gene: Back to Original Sin Again?" dialog: a Journal of Theology. 1994: 33(1): 30-38.

  72. Peters, T. "Intellectual Property and Human Dignity." in: The Genetic Frontier: Ethics, Law and Policy, eds. Frankel and Teich. Washington, DC: AAAS, 1994.

  73. Peters, T. ed. Genetics: Issues of Social Justice. Cleveland: Pilgrim Press, 1998.

  74. Post, S.G. The Moral Challenge of Alzheimer Disease. Baltimore: The Johns Hopkins University Press, December 1995.

  75. Post, S.G. "On Not Jumping the Gun: Ethical Aspects of Genetic Testing in Alzheimer Disease." Annals of the New York Academy of Sciences: Apolipoprotein E Genotyping in Alzheimer's Disease. December 1996; 802(16): 111-120.

  76. Post, S.G., B. Beerman, H. Brodaty et al. "Ethical Issues in Dementia Drug Development: Position Paper from the International Working Group on Harmonization of Dementia Drug Guidelines." Alzheimer Disease and Associated Disorders. 1997; 11(Suppl. 3): 26-28.

  77. Post, S.G., "Physician-Assisted Suicide in Alzheimer Disease." Journal of the American Geriatrics Society. 1997; 45: 647-651.

  78. Post, S.G., "Slowing the Progression of Dementia: Ethical Issues" Alzheimer Disease and Associated Disorders. 1997; 11(Suppl. 5): 34-36 [General Discussion by P. Leber, et al. pp. 37-39).

  79. Post, S.G., "Resource Allocation and Societal Responses to Old Age: The Case of Alzheimer Disease." Ageing and Society. 1997; 17(1): 83-85.

  80. Post, S.G., P.J. Whitehouse, R.H. Binstock et al. "The Clinical Introduction of Genetic Testing for Alzheimer Disease: An Ethical Perspective." JAMA. March 12, 1997: 277(10): 832-836. [Reply to Letters, JAMA, 278(12): 979.]

  81. Post, S.G. et al. Tough Issues: Ethical Guidelines of the Alzheimer Society of Canada. Toronto: Alzheimer Canada, 1997.

  82. Post, S.G. et al. Ethics Considerations Series for National Dissemination, Alzheimer's Disease & Related Disorders Association. (adopted from the Fairhill Guidelines on Ethics in the Care of People with Alzheimer's Disease, S.G. Post, Principal Investigator). Chicago: National Alzheimer's Association, 1997.

  83. Post, S.G. and P.J. Whitehouse, eds. Genetic Testing for Alzheimer Disease: Ethical and Clinical Issues. Baltimore: Johns Hopkins University Press. 1998. 274p.

  84. Post, S.G., "Future Scenarios for the Prevention and Delay of Alzheimer Disease in High Risk Groups: The Moral Imperative." American Journal of Preventive Medicine (in press).

  85. Post, S.G., "A Response to the Stanford Analysis of Genetic Testing in Alzheimer Disease," Journal of the Kennedy Institute of Ethics (in press).

  86. Post, S.G. and P.J. Whitehouse, "Emerging Anti-Dementia Drugs: A Preliminary Ethical View," Journal of the American Geriatrics Society (in press).

  87. Post, S.G., "The Fear of Forgetfulness: A Grassroots Approach to Alzheimer Disease Ethics." Journal of Clinical Ethics (in press, Spring 1998).

  88. Post, S.G., "Advocacy for People with Alzheimer Disease." Improved End-of-Life Care: The HMO Challenge, edited by Steven Miles and K. Faber-Langendoen. Frederick, Md.: University Publishing Group (in press).

  89. Post, S.G., "The Concept of Alzheimer Disease in a Hypercognitive Society." Concepts of Alzheimer's Disease--Past, Present and Future, edited by K. Maurer, P.J. Whitehouse, and J.F. Ballenger. Baltimore: Johns Hopkins University Press (in press).

  90. Post, S.G., "Ethical Considerations in Pharmacoeconomics and Dementia." In Health Economics of Dementia, edited by Bengt Winblad. San Diego: John Wiley and Sons (in press).

  91. Post, S.G., "Social and Ethical Considerations." Pharmacotherapy of Alzheimer's Disease, ed. by Serge Gauthier. London: Martin Dunitz, Ltd. (in press).

  92. Post, S.G., "Ethical Aspects of Geriatric Care." In Geriatric Medicine, edited by Dennis W. Jahnigan and Robert W. Schrier. Cambridge, Ma.: Blackwell Publications, 1996, pp. 245-255.

  93. Post, S.G., "People with Dementia: A Moral Challenge." In Birth to Death: Science and Bioethics, edited by David C. Thomasma and Thomasine Kushner. Cambridge, U.K.: Cambridge University Press, 1996.

  94. Proctor, R. Cancer Wars: How Politics Shapes What We Know and Don't Know about Cancer. New York; BasicBooks (Division of HarperCollins Publishers), 1995. 356p.

  95. Quaid, K.A. and M.K. Wesson. "Exploration of the Effects of Predictive Testing for Huntington Disease on Intimate Relationships." American Journal of Medical Genetics. 1995; 57: 46-51.

  96. Relkin, Norman et al., SG Post "Apolipoprotein E Genotyping in Alzheimer's Disease: A Consensus Statement." Lancet. 1996; 347(9008): 1091-1095.

  97. Rothschild, Joan. "Engineering the 'Perfect Child': Feminist Responses," in M. Pellikan-Engel, ed., Against Patriarchal Thinking: A Future Without Discrimination? Amsterdam: VU University Press, 1992. pp. 233-41

  98. Rothschild, Joan. "The Perfect Baby," in B.K. Rothman and D.L. King, eds., Encyclopedia of Childbearing: Critical Perspectives. Phoenix, AZ: Oryx Press, 1993. pp. 302-03

  99. Rothstein, M.A., ed. Legal and Ethical Issues Raised by the Human Genome Project. Houston, Texas: University of Houston Health Law and Policy Institute, March 1991. 449p.

  100. Shannon, T.A. "Ethical Issues in Genetic Engineering: A Survey." Midwest Medical Ethics. Summer 1992; 8(1): 26-29.

  101. Smith, D.H., K.A. Quaid, R.B. Dworkin et al. Early Warning: Cases and Ethical Guidance for Presymptomatic Testing in Genetic Diseases. Bloomington, Indiana: Indiana University Press. (Forthcoming)

  102. Tambor, E.S., B.A. Bernhardt, G.A. Chase et al. "Offering Cystic Fibrosis Carrier Screening to an HMO Population: Factors Associated with Utilization." American Journal of Human Genetics. 1994: 55(4); 626-637.

  103. Tambor, E.S., G.A. Chase, R.R. Faden et al. "Improving Response Rates through Incentive and Follow-up: The Effect on a Survey of Physicians' Knowledge of Genetics." American Journal of Public Health. November 1993: 83(11); 1599-1603.

  104. Trottier, R.W. and L.A. Crandall. Public Sector Genetic Services: Current Status and Potential Issues Raised by the Human Genome Project. Final Report, Morehouse School of Medicine; Atlanta: October 1996.

  105. Walters, L. and T.J. Kahn eds. Bibliography of Bioethics, Volume 21. Washington, DC: Kennedy Institute of Ethics, Georgetown University, 1995. 783p.

  106. Walters, L. and T.J. Kahn eds. Bibliography of Bioethics, Volume 22. Washington, DC: Kennedy Institute of Ethics, Georgetown University, 1995. 761p.

  107. Walters, L. and T.J. Kahn eds. Bibliography of Bioethics, Volume 23. Washington, DC: Kennedy Institute of Ethics, Georgetown University, 1997. 774p.

  108. Wertz, D. "Ethical and Legal Implications of the New Genetics: Issues for Discussion." Social Science and Medicine. 1992: 35(4); 495-505.

  109. Wertz, D. "Provider Biases and Choices: The Role of Gender." Clinical Obstetrics and Gynecology. September 1993: 36(3); 521-531.

  110. Wertz, D. and J. Fletcher. "Geneticists Approach Ethics: An International Survey." Clinical Genetics. 1993: 43(2); 104-110.

  111. Wertz, D. and J. Fletcher. "Proposed: An International Code of Ethics for Medical Genetics." Clinical Genetics. 1993: 44(1); 37-43.

  112. Wertz, D. "International Research in Bioethics: The Challenges of Cross-Cultural Interpretation." Bioethics and Society: Constructing the Ethical Enterprise. eds. R. DeVries and J. Subedi. New Jersey: Prentice Hall. 145-165.

  113. Wertz, D. "Opinions des geneticiens de 37 pays sur la preselection du sexe." Sociologie et societes. Autumn 1996: XXVIII(2); 77-92.

  114. Wertz, D. "International Perspectives on Privacy and Access to Genetic Information." Microbial & Comparative Genomics. 1997; 2(1): 53-61.

  115. Wertz, D. "Society and the Not-so-New Genetics: What Are We Afraid of? Some Future Predictions From a Social Scientist." The Journal of Contemporary Health Law and Policy. 1997; 13: 299-346.

  116. Wertz, D and PR Reilly. "Laboratory Policies and Practices for the Genetic Testing of Children: A Survey of the Helix Network." American Journal of Human Genetics. 1997; 61: 1163-1168.

  117. Wertz, D. "Is There a Women's Ethic' in Genetics: A 37-Nation Survey of Providers." JAMWA Winter 1997; 52(1): 33-38.

  118. Wertz, DC and JC Fletcher. "Ethical and Social Issues in Prenatal Sex Selection: A Survey on Geneticists in 37 Nations." Soc Sci Med 1998; 46(2): 255-273.

  119. Wertz, DC. "Genetic Counseling in Mexico." American Journal of Medical Genetics. [Editorial Comment] 1998; 75: 424-425.

  120. Wertz, D. and J. Fletcher. "A Critique of Some Feminist Challenges to Prenatal Diagnosis." Journal of Women's Health. 1993: 2(2); 173-188.

  121. Wertz, D. and J. Fletcher. "Feminist Criticism of Prenatal Diagnosis: A Response." Clinical Obstetrics and Gynecology. September 1993: 36(3); 541-567.

  122. Wertz, D. "Ethical Issues in Prenatal Diagnosis: Policy Implications of My Research." In: Assessing Genetic Risks: Implications for Health and Social Policy, eds. Andrews et al. Washington, DC: National Academy Press, 1994.

  123. Wertz, D. "Provider Gender and Moral Reasoning: The Politics of an Ethics of Care." Journal of Genetic Counseling. 1994: 3(2); 95-112.

  124. Wertz, D. et al. "Genetic Testing for Children and Adolescents: Who Decides?" JAMA. September 1994: 272(11); 875-881.

  125. Wertz, D. et al. "Testing Healthy Children and Adolescents; Recommendations for Avoiding Harm." The Genetic Resource. 1994: 8(2); 16-20.

  126. Wertz, D. "Professional Perspectives: A Survey of Canadian Providers." Health Law Journal. 1995; 3: 59-130.

  127. Wertz, D. "Ethics." In: Pediatric Neuropathology, ed. S. Duckett. Baltimore: Williams & Wilkins, 1995.

  128. Whitehouse, P.J., E.T. Juengst, T.H.Murray and M.J. Mehlman. "Enhancing Cognition in the Intellectually Intact." The Hastings Center Report. May-June 1997; 27: 14-23.

  129. Wilfond, B.S. and K. Nolan. "National Policy Development for the Clinical Application of Genetic Diagnostic Technologies: Lessons from Cystic Fibrosis." JAMA. December 1993; 270(24): 2948-2954.

  130. Winblad, B., S. Hill, B. Beermann, S.G. Post, A. Wimo, "Issues in the Economic Evaluation of Treatment for Dementia," Alzheimer Disease and Associated Disorders. 1997; 11(Suppl. 3): 39-44.