Legal Implications

The general Legal Implications related projects include insurance, policy making, privacy, crime, forensics, discrimination, justice, legislation and informed consent.

Legal Implications Funding Profile

Year Projects Known Known cost Average cost
1989 0 0 $0 $0
1990 5 5 $967,721 $193,544
1991 8 6 $755,722 $125,954
1992 5 5 $634,541$126,908
1993 3 2 $356,510 $178,255
1994 0 0 $0 $0
1995 3 3 $573,924 $191,308
1996 3 2 $266,898 $133,449
1997 5 5 $999,742 $199,895
1998 3 3 $489,814 $163,271
Total 35 31 $5,044,872 $162,738

The Legal Implications projects are listed by year, then by subgroup. It is the same list in different orders.

List by Year

1990

HG02138: Predicting Future Disease: Issues in the Development, Application, and Use of Tests for Genetic Disorders
Contract period: 09/29/90 - 09/30/93
Grant amount: $350,000
publications: yes

HG00119: Ethical and Legal Implications of Genetic Testing
Grant period: 09/26/90 - 06/30/93
Grant amount: $118,097
publications: yes

HG00160: Legal and Ethical Issues Raised by the Human Genome Project
Grant period: 08/01/90 - 09/30/91
Grant amount: $20,314
publications: yes

HG00130: Ethical and Legal Studies Relating to the Program to Map and Sequence The Human Genome
Grant period: 08/01/90 - 04/30/94
Grant amount: $127,402
publications: yes

HG00026: Ethical and Legal Issues in the Diffusion of Genetic Tests
Grant period: 05/01/90 - 04/30/94
Grant amount: $351,908
publications: yes

1991

HG00265: A Legal Research Agenda for the Human Genome Initiative
Grant period: 01/01/91 - 12/31/93
Grant amount: $91,318
publications: yes

HG00101: An Evaluation of the Application of DNA Technology in Forensic Science
Agreement period: 03/25/91 - 09/30/91
Grant amount: unknown
publications: yes

HG00270: State Governments and the Human Genome Project
Grant period: 04/10/91 - 09/30/93
Grant amount: $136,014
publications: yes

HG00481: Ethical and Policy Issues in Cystic Fibrosis Screening
Grant period: 09/30/91 - 08/31/94
Grant amount: $314,449
publications: yes

HG01651: Ensuring Confidentiality in the Publication of Pedigrees
Grant period: 04/01/91 - 03/31/95
Grant amount: $71,515
publications: yes

HG01767: An Experimental Study to Improve Risk/Benefit Appraisal
Grant period: 09/30/91 - 08/31/94
Grant amount: $72,250
publications: no

HG00503: The Human Genome Initiative and Access to Health Care
Grant period: 09/30/91 - 08/31/94
Grant amount: $70,176
publications: yes

HG20004: Impact of HGP Derived Technology on Genetic Testing, Screening and Counseling: Cultural, Ethical, and Legal Issues
Agreement period: 10/01/91 - 09/30/92
Grant amount: unknown
publications: yes

1992

HG00683: Access to the Genome: Justice at the Frontier of Science
Grant period: 05/13/92 - 04/30/94
Grant amount: $162,622
publications: yes

HG00703: Genetic Factors in Crime-Findings, Uses Implications
Grant period: 05/01/92 - 03/16/95
Grant amount: $78,478
publications: yes

HG00419: Reassessing Health, Normality, and Confidentiality
Grant period: 04/01/92 - 03/31/96
Grant amount: $175,494
publications: yes

HG00086: Legal Issues in Genetic Discrimination
Grant period: 11/01/92 - 10/31/94
Grant amount: $35,300
publications: yes

HG00551: Genome Mapping: Implications for Health and Life Insurance
Grant period: 07/15/92 - 12/30/95
Grant amount: $182,647
publications: yes

1993

HG00545: Managing Genetic Information: Policies for US Nurses
Grant period: 01/15/93 - 12/31/94
Grant amount: $90,984
publications: yes

HG00724: Academic-Industry Relationships in Genetics
Grant period: 02/01/93 - 07/31/95
Grant amount: $265,526
publications: yes

OD40065: DNA Forensics Science: An Update-Supplement
Agreement period: 10/1/93 - 09/30/94
Grant amount: unknown
publications: yes

1994

1995

HG01277: Conceptual Frameworks for Genetics Policy
Grant period: 05/01/95 - 04/30/97
Grant amount: $149,738
publications: yes

HG01005: Genome Technology & Reproduction - values & public policy
Grant period: 08/18/95 - 07/31/98
Grant amount: $324,186
publications: yes

HG01177: Research, Treatment and Informed Consent in Gene Therapy
Grant period: 09/15/95 - 09/14/97
Grant amount: $100,000
publications: yes

1996

HG01038: The Impact of DNA Typing on Criminal Investigations
Grant period: 06/01/96 - 05/31/97
Grant amount: $166,898
publications: no

HG01446: Anticipating Enhancement: Ethical, Legal and Social Issues
Grant period: 9/30/96 - 1/31/99
Grant amount: $100,000
publications: yes

HG00020: The First International Conference on DNA Sampling & Human Genetic Research: Ethical, Legal and Policy Aspects
Grant period: 09/01/96 -09/30/96
Grant amount: unknown
publications: yes

1997

HG01086: Confidentiality, Privacy & Insurance
Grant period: 07/15/97 - 06/30/98
Grant amount: $352,810
publications: no

HG00402: Insurance Implications of a Complete Human Genome Map
Grant period: 07/01/97 - 06/30/99
Grant amount: $254,538
publications: yes

HG01555: A Model for State Policy on Genetic Testing/Screening
Grant period: 07/01/97 - 06/30/00
Grant amount: $102,846
publications: no

HG01662: Effects of Restricting Insurers' Use of Genetic Information
Grant period: 07/01/97 - 06/30/99
Grant amount: $90,693
publications: yes

HG01765: Informed Consent to DNA Banking for Research
Grant period: 9/30/97 - 8/31/00
Grant amount: $198,855
publications: yes

1998

HG01838: Human Genome Project: Science, Law, and Social Change
Grant period: 02/16/98 - 02/15/99
Grant amount: $44,325
publications: yes

HG00192: Social and Policy Issues in Genetic Technology Transfer
Grant Period: FY 1998-1999
Grant amount: $30,160
publications: no

HG01889: Genetics Legislation: Syntax, Science and Policy
Grant Period: 9/30/98-6/30/01
Grant amount: $415,329
publications: no

List by Subgroup

Legal & Justice: $897,889

HG00160: Legal and Ethical Issues Raised by the Human Genome Project
Grant period: 08/01/90 - 09/30/91
Grant amount: $20,314
publications: yes

HG00130: Ethical and Legal Studies Relating to the Program to Map and Sequence The Human Genome
Grant period: 08/01/90 - 04/30/94
Grant amount: $127,402
publications: yes

HG00026: Ethical and Legal Issues in the Diffusion of Genetic Tests
Grant period: 05/01/90 - 04/30/94
Grant amount: $351,908
publications: yes

HG00265: A Legal Research Agenda for the Human Genome Initiative
Grant period: 01/01/91 - 12/31/93
Grant amount: $91,318
publications: yes

HG00683: Access to the Genome: Justice at the Frontier of Science
Grant period: 05/13/92 - 04/30/94
Grant amount: $162,622
publications: yes

HG01446: Anticipating Enhancement: Ethical, Legal and Social Issues
Grant period: 9/30/96 - 1/31/99
Grant amount: $100,000
publications: yes

HG00020: The First International Conference on DNA Sampling & Human Genetic Research: Ethical, Legal and Policy Aspects
Grant period: 09/01/96 -09/30/96
Grant amount: unknown
publications: yes

HG01838: Human Genome Project: Science, Law, and Social Change
Grant period: 02/16/98 - 02/15/99
Grant amount: $44,325
publications: yes

Insurance, Discrimination, Genetic Testing, Privacy & Confidentiality: $2,072,375

HG02138: Predicting Future Disease: Issues in the Development, Application, and Use of Tests for Genetic Disorders
Contract period: 09/29/90 - 09/30/93
Grant amount: $350,000
publications: yes

HG00119: Ethical and Legal Implications of Genetic Testing
Grant period: 09/26/90 - 06/30/93
Grant amount: $118,097
publications: yes

HG01767: An Experimental Study to Improve Risk/Benefit Appraisal
Grant period: 09/30/91 - 08/31/94
Grant amount: $72,250
publications: no

HG00503: The Human Genome Initiative and Access to Health Care
Grant period: 09/30/91 - 08/31/94
Grant amount: $70,176
publications: yes

HG20004: Impact of HGP Derived Technology on Genetic Testing, Screening and Counseling: Cultural, Ethical, and Legal Issues
Agreement period: 10/01/91 - 09/30/92
Grant amount: unknown
publications: yes

HG01651: Ensuring Confidentiality in the Publication of Pedigrees
Grant period: 04/01/91 - 03/31/95
Grant amount: $71,515
publications: yes

HG00419: Reassessing Health, Normality, and Confidentiality
Grant period: 04/01/92 - 03/31/96
Grant amount: $175,494
publications: yes

HG00086: Legal Issues in Genetic Discrimination
Grant period: 11/01/92 - 10/31/94
Grant amount: $35,300
publications: yes

HG00551: Genome Mapping: Implications for Health and Life Insurance
Grant period: 07/15/92 - 12/30/95
Grant amount: $182,647
publications: yes

HG01177: Research, Treatment and Informed Consent in Gene Therapy
Grant period: 09/15/95 - 09/14/97
Grant amount: $100,000
publications: yes

HG01086: Confidentiality, Privacy & Insurance
Grant period: 07/15/97 - 06/30/98
Grant amount: $352,810
publications: no

HG00402: Insurance Implications of a Complete Human Genome Map
Grant period: 07/01/97 - 06/30/99
Grant amount: $254,538
publications: yes

HG01662: Effects of Restricting Insurers' Use of Genetic Information
Grant period: 07/01/97 - 06/30/99
Grant amount: $90,693
publications: yes

HG01765: Informed Consent to DNA Banking for Research
Grant period: 9/30/97 - 8/31/00
Grant amount: $198,855
publications: yes

Crime & Forensics: $245,376

HG00101: An Evaluation of the Application of DNA Technology in Forensic Science
Agreement period: 03/25/91 - 09/30/91
Grant amount: unknown
publications: yes

HG00703: Genetic Factors in Crime-Findings, Uses Implications
Grant period: 05/01/92 - 03/16/95
Grant amount: $78,478
publications: yes

OD40065: DNA Forensics Science: An Update-Supplement
Agreement period: 10/1/93 - 09/30/94
Grant amount: unknown
publications: yes

HG01038: The Impact of DNA Typing on Criminal Investigations
Grant period: 06/01/96 - 05/31/97
Grant amount: $166,898
publications: no

Legislation & Policy: $1,829,232

HG00270: State Governments and the Human Genome Project
Grant period: 04/10/91 - 09/30/93
Grant amount: $136,014
publications: yes

HG00481: Ethical and Policy Issues in Cystic Fibrosis Screening
Grant period: 09/30/91 - 08/31/94
Grant amount: $314,449
publications: yes

HG00545: Managing Genetic Information: Policies for US Nurses
Grant period: 01/15/93 - 12/31/94
Grant amount: $90,984
publications: yes

HG00724: Academic-Industry Relationships in Genetics
Grant period: 02/01/93 - 07/31/95
Grant amount: $265,526
publications: yes

HG01005: Genome Technology & Reproduction - values & public policy
Grant period: 08/18/95 - 07/31/98
Grant amount: $324,186
publications: yes

HG01277: Conceptual Frameworks for Genetics Policy
Grant period: 05/01/95 - 04/30/97
Grant amount: $149,738
publications: yes

HG01555: A Model for State Policy on Genetic Testing/Screening
Grant period: 07/01/97 - 06/30/00
Grant amount: $102,846
publications: no

HG01889: Genetics Legislation: Syntax, Science and Policy
Grant Period: 9/30/98-6/30/01
Grant amount: $415,329
publications: no

HG00192: Social and Policy Issues in Genetic Technology Transfer
Grant Period: FY 1998-1999
Grant amount: $30,160
publications: no